Job Description

Join the AKU Society as the Head of Patient Support and Welfare, a pivotal role dedicated to enhancing the lives of patients with alkaptonuria (AKU), a rare genetic disorder. In this part-time position, you will be the primary liaison between patients, their families, and healthcare professionals, ensuring they receive the vital support and resources they need. Your responsibilities will include developing patient welfare programs, providing guidance on healthcare and welfare issues, supporting patients when they attend the NHS National AKU Centre in Liverpool, and fostering community connections. Ideal candidates will possess strong communication skills, a background in nursing or healthcare, and a passion for supporting individuals facing unique challenges.